Mesothelioma Help

Mesothelioma Ask the Nurse Series: Eleanor B. Ericson and Lisa Hyde-Barrett
Special Guest – Charlene Haouiliya

Below you can see the questions covered on this live Q&A

– What does a social worker do for a family going through mesothelioma?
– Can young people develop mesothelioma?
– I was exposed to asbestos and I don’t have mesothelioma. I’m I still at danger of developing the disease?
– Can asbestos travel on clothing?
– What constitutes exposure to asbestos? Inhaling or ingesting? Does it still happen?
– What is the difference between pleural and peritoneal mesothelioma?
– Since the COMMAND clinical trial has been stopped. What can the community do to look for other options?
– Do you know any specific drugs that are immunotherapy being used to treat mesothelioma?
– Why do navy veterans make up a large portion of cases? Where do Veterans can get help?

Youtube Video Transcript

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Welcome to the third annual QA mesothelioma ask the nurse series with nurses le Erickson and Lisa hi ferret lisa has been a thoracic surgery nurse for nearly 25 years and has the skill and knowledge to care for and support mesothelioma patients she is currently at a major teaching hospital and mesothelioma Center through her work she has helped ease the stress of patients and their families by offering a comforting hand she

is passionate about helping the mesothelioma community I will use a graduate of the Mount Auburn Hospital School of Nursing and worcester state college has worked in the surgical intensive care unit at a major teaching hospital and mrs. Ely oma Center for more than 30 years we welcome both to experienced nurses and thank you for your time we also have Charlene H on the call and she is an experienced mesothelioma social worker she has worked

with mesothelioma patients and families for over 10 years Charlene we’re going to direct the first question to you ok what does a social worker do for a family going through mesothelioma ok so with social workers do lots of stuff a lot of different stuff for patients and families dealing with the diagnosis of mesothelioma but first and I think the most important piece that social workers can offer is to take care of the emotional

side of a diagnosis like that it’s one of those diagnoses that people get all of a sudden so it can be very scary and so we need to really pay attention to what’s happening emotionally so that we can sort of take care of that piece and people can then get through their treatment so that’s a major piece that we do exam or you’d like me to say about that or specific questions up

a challange talk so we’ll wait about the you form such special relationships with these solutions Lisa and I have seen over oh oh all regions and what what how do you think you’re able to do that where a lot of other people aren’t able to do it up yep I think that is really really important you know it’s a long process and so when I want the folks at a hospital setting I

really try to connect with them on a daily basis to check in to see how things are going and we not only pay attention to the patients because they clearly are very important but the family members are also very important to you fair takers caretakers can really be under a tremendous amount of stress because life doesn’t stop for a caretaker just because their loved one has a diagnosis they still have to continue to

run their family and work and whatever they might do have to do and so we really want to pay attention to the caretakers and address the stress level so I do that by by meeting with them on a daily basis both the patient and the family members checking in emotionally kind of taking a temperature bomb if you will in terms of where they are and providing support emotional support all the way through

we do this by to see what I’ve run support groups for them which is really important right a support group for just just caretakers because their issues are different than the patient and so that’s those are some of the ways in which we do that we also do pay attention to some of the concrete needs that people need because that’s important to some people have to travel a great distance to get treatment

so that can be taxing not only only emotionally but also financially so we address some of those issues and try to lessen that burden by helping them find housing or flight information anything that will help reduce their stress so that they can pay attention to what its most important and it is very stressful right yes extremely self yes yeah Charlene what would you say one of the biggest stresses is traveling like if you have

to some state yes I think a confused yeah it’s expensive but it’s also sort of the whole uprooting teeth and when you do come for treatment it’s not you know you do have to come for a length of time and you’re told that I’m up front but you know no one can give you sort of an end date of when the treat it’s over and that can be extremely stressful you know it’s

not a time-limited stress it’s sort of a chronic stress and you have to sort of figure out how to deal with that chronic stress and how to take care of yourself and being far from home you don’t have your natural support you don’t have your own family next to you so the social worker becomes one of those support people not that we take the place of family but we are there by your

side in those times that can be trying and difficult okay yeah and you see every patient right because that’s yeah every patient just about every day is it coming to treatment centers and hospitals to have a social worker or a depends most major yeah I think most major teaching hospitals have social workers employed there and because it is such an emotional there’s an aspect of emotionality that is so important so I would say most

likely yes I don’t know for sure but I would say probably yes okay you know and like you said it’s really kind of a journey you know they said you know patients said with the you know this strange diagnosis and then got so many ups and downs and you know and what we’ve seen two is that a lot of the patients get very close to each other a set and then you

know the path may say you know one made you very well and one may not and you know can you talk a little bit about like that you know yeah I think that’s a really important point patients come out here and they do form form bonds with each other very close to family members especially and you know not until to put it bluntly solve the patient’s don’t make it and it’s really difficult

for the bonds that they have made and for those folks that are here with them because they do become like family all of them are kind of away from home and there wherever they are whatever center they are they form bonds and become really close to each other support each other through all the tough times and so it can’t be hard when they move a loved one but also a friend that they’ve made

for that can be can be really tough and then if the guilt that goes along with that you know my loved one made it but their loved one didn’t and how do I cope with that and it would be really tough yeah I think I think we’ve seen that more and more about you know and patience dude I and um how you know you have this tight emotional bond with this group

of people that you probably didn’t know you know sat on server yeah before and then all of a sudden you know you loved one has died is we kind of leave the caregivers out there you know nobody else knows what they dentro yeah you know family members except for that that what groups they had right and I hope that Ben holds true for sort of extended family members like if a wife comes

out here with her spouse and they have children and the children are able able to come out because just financially it’s not not feasible we see that a lot that the children might come out at the very end and the White has gone through this entire journey and the killed and are sort of coming in at the end piece and haven’t have a process this whole thing true and really the stuff ends

up becoming more bonded with the other spouses that have been here with her throughout the journey so would that can be a very difficult piece to deal with yeah I’m fatness and you know shelly can you talk a little bit too about what complicated grief as far as like mesothelioma goes yeah I think a huge piece of it is around guilt there are some people get it and some people don’t and why

did you get it and wide and die and how come you know if it’s a husband and a wife or whatever and they was exposure that that we see that a lot and then the grief is not just about grieving about the loved ones IE it becomes complicated by by this whole guilty factor and that can be really really difficult it’s hard to and that’s why we run support groups that separates where

patients might have their turn to talk and spouses have sort of their own group because their issues are different and they to be able to say that I feel guilty I feel bad I can’t tell you how many sauces I’ve heard say I wish it was me I wish it was me we were both exposed that I wish it was me and I wish it wasn’t him and I feel so guilty

and I feel so badly and so it’s really hard to grieve the death when you are also trying to grapple with your own guilt around that mm-hmm you know what do you do it starving if you’re a widow of somebody passes away you know is it right I think you have to really pay attention to what’s happening and you know we topped with chocolate sauce is our I’m sorry kind of once you’re

done with this meeting or whatever whomever the social worker is in the center and you go back home really really encourage people to either get their own counselor or therapist try to join a group some people are really great join groups they feel comfortable others just don’t feel like they can share their grief with others as others and such is not ready to do that and that’s okay but I think they really need

to get a professional person to conference because everybody experiences this in their own way some cooks really well some do not and then they also have a I from all that that piece they then have the concrete needs that they need to go home to you know now if their spouse died maybe they can’t afford to stay in a home they need to sell their home they need to figure out what to

do so there’s just so the levels of stress park it’s multi-layered and so they really need the support of a professional which sort of help them figure out how to navigate that and where do I start top of all that you still have all these medical decisions that people you know you know Desai have to decide in a way to go if they should go anywhere or if they should get involved in

a clinical trial or if they should you know right he also you know have that and I think also I think a lot of people kind of go over and over that in the head when things don’t go well they second-guess everything that they decided you know right right and you know we try to talk with people you’ve made the decision to be here and so we need to kind of go

forward and try to revisit those decisions you know we tell people you’ve made that decision so let’s go forward and put our best foot forward and try to try to keep looking to the future to see to see where we go but people do second-guess themselves a lot especially when it doesn’t go well and that’s another piece that comes in the guilt you know my husband did this for me now he didn’t

do well I wish I had never talked them into it I wish I had never done this so you know if social workers can get to folks even before they decide what they’re going to do around the process those are some of the issues that I would bring forward you know how did you make this decision together how did you come to it as a couple because if you can do some

of that piece you don’t get some of those complications at the end mm-hmm Susan’s you know we’ve seen shalin in action you just have no idea how many people depended depend on her and you know and all the support groups they really enjoy those support groups because it gives them a long time to talk into does anybody else have issues Chioda friends yeah it’s amazing I think the other pieces that becomes difficult to

is when there are young children involved and we’ve had you know many cases where their sins you know younger kids involved and I think family really grapples with how do we help the kids get through this as well so you have the self is trying to trying to get through this and navigate this and then you have some young kids and they have to eat it do we bring them out with us

continue with you and then normal routine and how do we work with them and you know that can be very very difficult and and if there are young children involved from there are special in different ways to talk with kids depending on the developmental age and what is appropriate to say and what is it appropriate to say and you know when you bring them up to see whoever it is and when don’t you

or grandchildren whatever it may be so that can be a very another piece of dispose of the caregiver whomever it may be again more decisions that have to be made for the caregiver so it was just a tremendous amount that they have to do ya later and i were talking today which thinkin you know it really is all different ages you know from the youngest gap that we can rerun was wet 18 yea

though so it’s just not you know these middle-aged couples that are going to know your family’s got amazing yep and you know we’ve seen as you guys know with something more women guide for shipping as well and that portable dynamic for for the husband we’re now maybe most you know normally the wise becomes is usually the caretaker in the family and now those roles come reverse and it’s very difficult you know I’ve seen

a lot of men really struggle with you know either back caretaker role or figuring walk out what to do how do I help my wife she was always the nurturer how do I you know how do I guess movements and how do I support her you know they’re kind of lost in that process so that’s another piece that I would you know kind of sit with them and help them think about

that and you know how do we do this and it’s acknowledged you yes it’s a role that maybe you’ve never played before it’s probably really talk but we can get you through it them and staying on a topic of age I had a question how young can people develop mesothelioma when wealthy guys 18 rate yeah yeah did you see understand yeah I see medium if I think I have a solid 18 yeah

yeah I think I heard of a case of peritoneal me so I’ll only younger but I never saw 18 was the youngest is I think we’ve seen yeah and you know that that’s very young to try to figure out did you turn the disease yeah yeah really yeah and you know because use the usual incubation period for for me so is what 20 to 50 years so and right you know kind

of flies in the face of all that right Oh thanks but you know I think she’ll shalin is you know how to workers just a vital part of the whole team and then I think that’s what people need to hear that they have to be comfortable with the team you know they have to you know have to want you know they have to really just be comfortable you know the bit that they

you know being well taken care of right now and I think people should should seek out the social worker wherever whatever team they go to I mean it we are well mulch places so I think it’s really important that if someone doesn’t seek you out that you seek them off because if you don’t pay attention to the emotional piece it’s really hard to heal it really is it really goes hand in hand

with the physical healing is the emotional piece well that’s all there charlie just quick so la I obviously some patients after they leave the hospital and you know oftentimes they might be at a hospitality home or wherever and it seems like there should be a social worker involved but at that point they’re you know they’re kind of moving forward to getting home yeah is there a bridge to feel from hospital to home will

some help yeah that’s always a tough piece one of the things I usually tell people is to when they do get home because you know we take quite good care of them when they are with us or whatever they may be if there’s a socialist or they’re going to be taking good care of and people feel very held and taking care of and then when they go home you know I’ve heard

people say oh this one feel abandoned because you know we had all the support and we go home we don’t have much so I really encourage people to connect with their local cancer centers wherever they may go and connect with the folks there nine times out of ten is a social worker there’s some kind of a group it might not be specifically from usual SE leoma but it could be for something else

that might be appropriate for them so I really tried to call people to reach out and do that and not be so isolated with this because as you know it’s a really rare disease and sometimes I can’t find anybody else diagnosed when they come to a center it doesn’t feel some rare when they go home it does feel like that again so it’s trying to help them not feel life of it and

to reconnect with a Cancer Center you know in their local community and there are resources out there right selling but you know from the social worker point of view for you no charge like the whole Lodge and you know different places all across the country absolutely defensively yeah yeah cuz I know I know you do a lot of that too you know a lot of helping connecting families with you know different resources yeah

yeah because it’s so isolating and you know when they get home and just really need to try to stuff their life as best I can it’s not always the same it might be different and you know it sort of calls a new normal that’s exactly what they was what it was like before but that’s okay and there’s a whole adjustment period and within that adjustment period they need support around that so they really

do need to connect with their local local cancer centers or whomever to to get that support because oftentimes they sort of tapped out their family and so now let’s tell them to really try to turn to professionals because that’s no that’s where that’s where it would be helpful for them to go yeah yeah I’m Charlie I yea sorry go ahead go ahead did you find it me so patients just because of you

know the rarity of it you find a huge difference between their experiences and someone who might they have lung cancer oh yeah very much so I think because it’s so rare oftentimes the patient who diagnosed with it has never heard it before until they had a diagnosis and so it’s so frightening they just say have no idea what it’s about they don’t they have some and they don’t know what the people have gone

through it where other maybe lung cancer survivors might know someone else is gone through it when it’s gotten through it and then okay on to live it you know a decent life but you don’t Billy OMA you know if you don’t know anything about it you don’t know anyone caught it it’s really hard to sort of be hopeful and intense think of what the future might hold so it is it’s really scary

yeah and I think when they do find out what it is they start to do research then it becomes oftentimes even more scary because you know they read in a dire statistics but and we always tell people try not to do that but when you go to the center wherever it is that you may go and you talked with the doctors and you find that it’s more hopeful to try to stay focused

on what your team is saying vs maybe what the internet is saying because if it gets very very confusing for people yeah yeah I guess and Sean how important you have your relationships with these people I mean kind of shows how important the social workers relationship is with of it with the patient yeah i think it is we really try to guide them through the whole process and sort of help them interpret a

lot of what the doctor saying because x sometimes can be overwhelming trying to sit in on meetings with doctors and patients and families that sort of help interpret that so when the docs leave the room we can sort of say did you get that you understand that one of the questions can we help you with when things aren’t going well trying to help them be more assertive and aggressive in addressing the team

and really trying to get their questions answered and just kind of being parallel with them in that process and trying to help them navigate that whole piece I did have one other question on when we were talking about the guilt and that the surviving spouse has and from someone who has passed from mesothelioma or has been diagnosed if the spouse that survived is that spouse still at risk and does he or she need

to be tested regularly for mesothelioma oh that’s a good question i don’t know that’s the lisa or any question i think if they were exposed to asbestos it could you know if they’re developing symptoms but you can’t just catch it because you will with so many legends of miami have to be exposed to it you have to have thumbs like predisposed because some people who are exposed to asbestos don’t get me to the

other than most people though that are supposed to sell clothes groups don’t get me some so it’s the real writers like you back but when Ellie there really isn’t like a screening test people are always asking right it really isn’t anything because it’s such a client it’s not it’s such so complicated you know all the different URLs wouldn’t exist you know it’s just it’s very complicated as a complicated these the complicated diagnosis it’s

complicated treatment I mean if progress is being made of all of those fronts but it still complicated so right there’s really no screening tool I mean they’ve been you know again working on different things but you know nothing I guess one of the big things I heard what a one of the mesothelioma physicians say about ten years ago and I always remembered it he was talking about you know progress that was being made

he said you have to remember you know and in you know within the last 15 years it’s just getting to the point it’s like probably 15 years ago if you had used the philly oma that was the only criteria to enter into most of these clinical trial now you have to have a certainly a lot of them are much much more specific you know you have to have a certain subtype of mesothelioma

you have to have at you know you have to have gone go on to a treatment are not going through treatment whatever the clinical trials you know thank you know what kind of evolving but it’s really you know I at the point where you could you know is a simple screening just for it no there’s no screen yeah my next question is and does asbestos travel on clothing and is there a possibility

of second-hand exposure yes it does travel on closing in that’s how I’m a lot of people or younger people get discusses it that maybe their parents product home on they’ll work clothes and maybe the child you’ll have the father and head on to what clothes in it it will probably did this so yes it does travel and there is secondary exposure yeah we’ve had quite a few patients that have you know been exposed

by doing the wife might have been exposed by doing the husband’s laundry or different things like that and um you know they’re also looking into that a little bit further because there are some you know most people can be exposed and not developed mesothelioma so what makes it what makes the subset of patients that do develop mesothelioma what makes them susceptible to me so you know they you know if they you know the

same exposure as other people’s that’s why that you know they’re looking at the different genes and different you know different variables to see you know what you know what is the common commonality of it all right you know the asbestos you know it’s still in the United still in its all over the place so the United States we still use it for you know different things brake lining things like that it’s not illegal

be nice and you know in all the homes so yeah a lot of homes especially up here and you know where the naughtiness how a lot of it used for insulation in older homes and now and they are also seeing a great you know big you know england in australia are you know have a lot of mesothelioma SS south africa and you know a lot of places that you know developing third-world company

countries because they’re you know still using it its chair so it’s still you’re still being exposed right it’s inexpensive to use yeah yeah inexpensive and it was only what last year that canada opened their mind again and i think they did close it but they had it open again and they were exporting a special to china into you know south africa you know like as I good news there’s a lot of work being

done you know I’m gonna mm-hmm and what constitutes exposure to asbestos is it inhaling or ingesting could be both right you know some theories that you know you inhale it in its dormant and it’s something something makes it triggers it to develop into me so you know and to into what you know the beginning being think of mesothelioma like if you talk to a lot of patience a lot of times no they’re

fine and then all of a sudden maybe they had an accident or they sell something you know they don’t know just what in the body to trigger it you know things right but it helped it chewed on to the shortness of breath oh what a lot of them do a diagnosed by people thinking that you know they had pneumonia you know they think they have pneumonia and that would be the common it’s not

that you know that would be the most common thing to have you no obvious symptoms you know it’s reasonable to say that you know it wasn’t all you write with a friend yes absolutely everyone starts out with pneumonia diagnosis and then when it doesn’t go where evaluation reveals use them and it takes a while it’s getting quicker but you know a lot of times the initial initial biopsy might be negative and then

you know they you know see that it and then you know like maybe take six months to finally get to diagnose me fulfillment and also the physician that they might be dealing with who never seen mesothelioma so you might not be aware of the characteristics with what did these might suppose so it’s really very far removed from you know diagnosis so you would recommend finding different opinions or getting different opinions when you have you

know those types of symptoms well not everybody who has money’s going to have needs are no no you go to the doctors with shortness of breath it’s probably one of the you know they say only being counted longer where they do a chest x-ray and you know they send you home with some antibiotics I think it’s a pretty routine thing I don’t think someone’s you know I think it’s the obvious that you

would treat when you agreed le yes yeah see I think you know you like felling said we see so many patients with mesothelioma think of it as very calming and it’s less than 1% of all the cancer diagnosis in the United States what’s the one percent and a hundred times more patients that have one camp and you know that so you’re it would be you know their differential diagnosis probably would you know

would start with pneumonia and then you’d go from there you know I think the most important thing is that you have to wherever you get treatment you just have to be comfortable with you jeans you have to be comfortable with you know because all of the sentence in the United States you need you need at you know thoracic a thoracic surgeon who’s an expert on it you need a medical oncologist get these mesothelioma regularly

you need a radiation oncologist you know and all these people all come together you need specialized nurses you need social worker that knows what the journey is going to be like so what most I would say most of all the shanties mean I’d say how such thing but if you got you have to just feel comfortable with your decision and you have to feel comfortable that the people you know that you’re dealing with

you know you’re at peace list so I think it’s you know it’s really important as far as like if you feel you need to get a second opinion you know so far you know because again it’s I think it’s just violate you you’re comfortable with the scene and you know people come to go impresses people sometimes they’re like you know kind of skittish about getting a second opinion or they don’t want to

hurt anybody’s feelings you know everybody was so nice and all that and it really doesn’t hurt anybody’s feelings you know really what you’re you know it’s really what it’s going to be benefit you that’s what everybody wants they don’t you know it doesn’t really you know that’s the most important thing okay yes it so much so you thank you thanks for joining my next question is what is the difference between pleural and peritoneal peritoneal

mesothelioma and are those the most common types of mesothelioma okay Oh the difference is the location for mesothelioma is the lining of your lung and the mesothelium is one of the linings of year it oughta lines your abdomen so peritoneal mesothelioma is is in the abdomen the treatments are different and I would say that the set at the success rates are a little different I think peritoneal me so it has better survival when

you say leesa’s i would agree yes yeah yeah and peritoneal me so is you know your abdomen and they that is HUGE to affect I would say well women also then I never agree with that as well as in plural me so is more hello definitely women but it’s two to one I think men are more affected by you know peritonitis I chloromethyl yeah I guess it is like four different places that

you can help me so mesothelioma the most common one is plural the lining of your one the second one is peritoneal the lining of your abdomen and the third one is ticular very small percentage and it’s probably one or two cases a year out of 3,000 maybe four or five but not many more than that of cardiac Sophie leoma and that that as far as treatment goes is very difficult to treat so

people they both have some major ones carrot Neil and well they have different different treatments love them and you know and there’s different in his experts in Jeff peritoneal in in just claw mm-hmm you know sometimes to like it seems like like the hyperthermic hypothermic chemo kind of sad with peritoneal and then the exhibit trying it in plural so you know they do you know some of the treatments might look the same but it’s

just different energy do you know any specific drugs that are being used to treat that are immunotherapy being used to treatment of Thule Emma so as of right now there’s clinical trials and if you go in from pool crowns gov I actually found three trials that were hosted that works so actively recruiting which means they’re accepting patients one of the trials with ages eighteen seventy and each child has its own specific criteria to be

able to enter into that program online most there’s no immunotherapy drugs that the fda’s who use all clinical trials so there’s one at the NCI and wash Washington is alleged to NCI yep yep everybody knows it is one in the Netherlands and which is ever so convenient and then the Fred Hutchinson Cancer Research which I accepted on I’m located but those are the raid that were actively recruiting for one to go into the

therapy but nothing’s been approved by the FDA as of yet okay so I immunotherapy itself is it’s a type of cancer treatment that the people they’re trying to develop that uses the body’s natural defenses to attack at the campus so they’re trying to like the internal boosts the immune system either by either like doing something laughs its prey by taking a pill pill are doing something to improve your immune system so the devil in

turn fight the cancer cell my Cinnabon eagle attacks individual cancer cells that’s more like ice and natural defense of can’t of oak and so that’s the whole idea behind it yeah you know which you know when Lisa was saying about the clinical trials that’s you know that’s where progress is going to be made nests where progress has been made with me so you know increase clinical trials and you know you know luckily there’s

quite a few of them now as opposed to a few years ago and then what so many of them and you know that’s right you know that that’s one of them well there are quite a few clinical trials if you if anyone’s interested clinical and give you on a box we can pop in user daily online and then list all and you know what I would there’s a lot and I

think that you couldn’t you know how are you arrange something to want to be involved in Wisconsin trials and you know truth be told it it helps everybody yeah yeah that’s the only you know it’s the way it is everything’s gonna progress there’s a simple get enrolled in clinical trials and for you know the statistics across the country is only it’s less than five percent of all cancer patients and roll in clinical trials

yeah it’s really minimal it’s very and that’s way to get college from yeah that’s what progress is going to be made and I you know I think some of the reasons that people don’t enroll in them is because a lot of times I think she’d get afraid you hear something on the news are you know I was a conference couple weeks ago and the patients there and they said well you know why

would I enroll trial I’ll end up being a guinea pig and it’s like well no that’s not how it works but that’s common that that’s not uncommon for someone to think like that you know clinical trials you have to if everything has to be informed consent you have to understand you know exactly what you’re signing up front what you’re not actually you know and all right so for instance this command trial that just

since it just stopped he’s mom that was a trial all the patients knew exactly what they were signing up for it was a trial that was you had to meet the requirements it wasn’t like you were going to be quote unquote a guinea pig because in order to do it you had to have already had the conventional therapy and then they were doing this in addition to see if it could you

know see if it could hold them up you know it could hold off via con you know and it’s just so many different strategy you just can’t you know say you know I don’t want to be in a clinical trial because I don’t want to you know I won’t get the best treatment is that it’s just not the fact so again comes back to that whole team you know you go talk

to your oncologist you talk to your surgeon you see what’s available what’s available what they would recommend because they all do work together and they are in it’s such a small population that you know they might know a clinical trial they might know of someone that’s going to be starting a clinical trial and then you know you’ll be able to get involved in that my next question is what is the best comparative cancer treatment

to look at that might help guide me and my family what is the relationship to melanoma so the relationship between use affiliate and melanoma I think they started working on this back in 2011 and it’s the b-pack one gene so it’s between P 81 and they notice that some characteristics are the same that if you were exposed to asbestos and you have this gene you will more apt to get musical yoma and it

can you have this gene you’re more apt to get melanoma of the eye as well they’re still continuing to do research I really don’t know if there are any other characteristics besides that major 1le do you want to say anything about that yeah this is like a gene they’re looking at it as you know like like you Sibley for like you know the same kind of mutation that’s in one that’s in the

other it’s again it’s something that you know research is kind of just brought up you know recently but you know it’s I’m trying to think of as far as another another I mean there are some other aggressive cancers I mean mutual feeling I’m was an aggressive cancer I mean you’re not some other rare aggressive cancers but none that I can think of really that you know kind of mimic this can you you

know little bit I guess the other point to that we haven’t made it that you know some people seem to do better than others and they’re not sure why that is you know some people with the same type of music feeling on with it you know three different types and some people you know seeing you know live you know log of time 57 you know 10 years and others with the same same

type might not and that’s you know again that’s what they try and guess what they’re working on okay I think Lisa went offline maybe she’s having problems but we we only have one question left I don’t know if we want to touch on this and like white do Navy veterans like make up a large portion of the cases and veterans like what options do they have do they need to go to specific

da centers for treatment or okay alright so veterans make up about one-third of all mesothelioma patients in the United States that’s his 3000th about a thousand a year the reason is probably the ship yet Navy people settled in the boiler rooms and in different you know cargo carriers difference here different areas but mostly you know the shipyards in different things like that so this like it is a third so a third of all

of them of all the veterans well a third of all the mesothelioma patients will be veteran the VA has done a lot in the last few years to acknowledge the veterans and they’ve actually fast-tracked it so it if you were in you know if you can prove your exposure which they have made easier to do then it’s easier to get some some help compensation from the government you are in boston i know this

is dr. Leventhal he is had they he worked at the VA in west roxbury and he has me he has me feeling on like veterans coming to see him from around around the country I think it’s another one on the west coast but you know you you have to with the VA to you have to just kind of push a little bit but it’s been much more responsive in the last few

years because of the you know and like I said it has been fast-tracked for veterans benefits site yeah it’s been 13 pretty much for many years so you know veterans and you know unfortunately I don’t know if a lot of people connect that you know me you know they explain it to them but you know it’s kind of hard to believe that you know 20 to 50 years later you know you service

that you gave to your country is now coming back to judge Julia yeah well I think it’s about time to close out this year’s Q&A session I want to thank you Elly Lisa and Charlene for taking the time out of their evenings to provide us with more information about mesothelioma if you would like more information about the disease please visit mesothelioma health org and I hope everyone has a great evening yes ok thank

you very much and Lisa and Ellie have a website the meso nurse that comes that correct yeah yeah yeah okay so you can find more information there too yeah thank you very much

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